So we have been home since Sat. evening and my mom went back home yesterday. So we r still getting back into our normal routine. Elise continues to slowly improve. Today is the first day she hasn't needed Ativan to help her get through her withdrawal symptoms. She is eating more and more each day, although its still barely enough to sustain a bird let alone a 4 year old. Yesterday I started giving her pediasure mixed with carnation instant breakfast in a syringe about every hour to keep her going. It seems to be working well.
She is having some regression with her speech. She mainly repeats the same phrase over and over or just repeats "mommy" not knowing what to say next. We are hoping this is temporary and a side effect of the narcotics. She is also having to relearn how to use the potty. She had to be put in diapers while intubated and it looks like she has forgotten or isn't able to control her bowels.
We had some friends over last night trying to return to some normalcy and Elise really seemed to enjoy everyone being here although she didn't really interact with anyone. I'll post again at the end of the week. Happy new year!
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