Tailgating has started up again, and the Elise was really excited.  Claire seemed to catch on pretty quick.

 We traveled home to Missouri couple weeks ago and had a great time.  We were able to see all the family a couple times.

 Then we made a trip to Spokane Washington for my Aunt's wedding.  This picture is of my Godmother Aunt Sue with her daughter, my Godchild, Samantha, who is Claire's Godmother.

 Elise was the flower girl at the wedding although she didn't walk down the aisle by herself.  I had to carry her because she was too scared.

 We couldn't wait to get home after many, many flights.  There is just never enough room on an airplane.

On a different note, Elise hasn't been doing so well.  Her PH has seemed to worsen over the last few weeks.  As you can see by the picture she is on Oxygen at home when needed and we added back Viagra to her meds.  She had a cardiac cath done once we got back and they found that her pressures are just as high as they were back in 2009 when she had her last cath which isn't good.  They also found that she is anemic which doesn't help her oxygen saturation.  So now we have increased her Viagra to a max does and added a daily iron supplement.  She will also see a hematologist which is a doctor that studies blood disorders to see if we can figure out why she is anemic.  Her cardiologists may also add a 3rd med called bosentin, but that is still a few weeks off.  We aren't sure if she got a virus that made her worse, but what we are sure of is that she didn't improve over the last 2 years like we thought she had.  She is in good spirits each day and is still going to school and therapy but tires very easily and is short of breath a lot.  So I'll let you guys know something when I know more.  Love you all, thanks for your thoughts.  Kristin